Welcome to 2 B's Lupie Groupies!
The Central & Western PA Walk to End Lupus Now is SATURDAY, SEPTEMBER 9 at 10AM at City Island, Harrisburg. Registration opens at 9AM. I would love for you to join our team, 2 B's Lupie Groupies! If you need directions or want to carpool there please let me know and I hope to see you there!
If you are new to the walk, my name is Brionna Marks and I am the Captain of 2 B's Lupie Groupies. I was diagnosed with Lupus in March 2018, then with Fibromyalgia March 2019, and this year I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) in June 2023.
Lupus is a chronic auto-immune disease that unfortunately is not curable. Lupus attacks your skin, tissues, and organs. We suffer from severe joint pain, exhaustion, fatigue, GI issues, skin rashes, kidney/liver/heart/eye/brain problems, and we are more susceptible to other auto-immune diseases and illnesses as we are immuno-compromised.
Last year I suffered more debilitating flare-ups than ever before. I am still recovering, but I have been able to walk unassisted more than last summer, which is a win! I typically have at least one flare-up per month, but the flare-ups unfortunately can last multiple months.
I am strength straining and working on balancing my work and personal life so I can take time to relax and heal, but also spend time with my friends, and focus on my career.
Lupus can impact more than your physical health. It makes you feel isolated, helpless, depressed and it’s a financial burden as well. That’s why it’s important to raise money for awareness, education, and help to assist those struggling financially due to Lupus. I hope one day I can say, "I used to have Lupus!"
Thank you for all your continued support and I cannot wait to see you Saturday, September 9!
All donations are 100% tax deductible.


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